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PROMs
Patient-Reported
Outcome Measures

Patient-Reported Outcome Measures (PROMs)

PROMs are standardized questionnaires or surveys that collect information directly from patients about their health, symptoms, functional status, and quality of life. These measures are intended to assess the outcomes and experiences of patients from their point of view, providing valuable insights into the impact of healthcare interventions and treatments on their health.

PROMs are typically administered before, during, or after medical interventions such as surgeries, treatments, and therapies. The questionnaires consist of validated items or scales that patients respond to, providing quantitative data that can be compared across individuals or groups.

Benefits of PROMs

PROMs have gained acceptance and incorporation in healthcare systems worldwide, encouraging patient-centered care, evidence-based decision-making, and continual improvement in healthcare outcomes. PROMs improve awareness of treatment success and promote treatments tailored to patient’s particular needs and goals by including the patient’s voice and perspective. PROMs can be helpful in numerous ways, among which:

  • Evaluation of the effectiveness of therapy: Using the patient’s perspective on changes in symptoms, functioning, and quality of life before and after treatment, PROMs help evaluate the efficacy of healthcare interventions. They provide information on how much the intervention has achieved the intended patient outcomes.
  • Shared decision-making: PROMs facilitate collaborative decision-making between healthcare providers and patients. By incorporating patient-reported outcomes, clinicians can better understand the patient’s priorities, preferences, and values and use this knowledge to guide treatment decisions that align with the patient’s objectives.
  • Clinical Audit and Quality Improvement: PROMs contribute to identifying quality enhancement opportunities and guiding interventions to improve patient outcomes and experiences. PROMs prioritize patient perspectives, identify areas for improvement, benchmark performance, drive quality assurance, inform decision-making, and engage stakeholders. Well-designed PROMs databases using validated questionnaires enhance the effectiveness and patient-centeredness of audit and improvement efforts, leading to better patient healthcare outcomes and experiences.
 
  • Population Health Monitoring: PROMs can be used to monitor the health status and quality of life of specific patient groups or populations over time at the population level. This data contributes to the comprehension of the burden of particular conditions, the monitoring of trends, and the development of public health strategies.
  • Patient-centered Care: PROMs guarantee that healthcare is centered on the patient’s requirements, values, and preferences, fostering a collaborative and individualized approach to care.
  • Research: While objective clinical measures capture disease progression or treatment efficacy, PROMs complement them by capturing patients’ perspectives on symptoms, functional limitations, and quality of life. Analyzing aggregated PROMs data allows researchers to investigate the efficacy of various interventions, identify factors influencing outcomes, and investigate patient experiences across diverse populations. Incorporating PROMs assists in patient stratification, enhances study design, and supports health economics research to achieve a more comprehensive understanding of the impact and value of healthcare interventions. PROMs surveys can also be used to determine research priorities from the patient’s perspective.

Patient-Reported Experience Measures (PREMs)

PREMs are patient-reported outcome measures (PROMs) that evaluate healthcare experiences. They are widely utilized in healthcare to complement clinical indicators and evaluate care quality.PREMs assess patient satisfaction, communication, involvement, and accessibility during care. 

Benefits of PREMs
  • Obtain patient feedback during care and enhance caregiver-patient contact.
  • Find ways to improve and track progress.
  • Evaluate new care groups and providers.
  • Assess care effectiveness and experience using patient-reported outcomes.
  • Show how digital health products or services improve healthcare.

Overall, PREMs assist healthcare providers, commissioners, and stakeholders improve patient outcomes by making informed service modifications.

Examples of PROMs & PREMs

The quality of life component investigates the patient’s perception of their overall well-being, life satisfaction, and the influence of their health condition or treatment on various life domains. It evaluates the patient’s social relationships, personal fulfillment, financial well-being, spirituality, and overall contentment to provide a comprehensive assessment of their quality of life.

Physical functioning is the evaluation of a patient’s capacity to perform activities of daily living, such as walking, dressing, bathing, and performing physical tasks. It assesses the effect of a health condition or treatment on a patient’s physical capabilities and identifies any limitations or disabilities.

Aspects of mental health encompass the patient’s emotional health, psychological distress, and mental health-related symptoms. It evaluates factors including anxiety, depression, tension, mood, self-esteem, and emotional functioning. Understanding the mental health status of the patient is essential for providing appropriate care and treatment.

Social functioning is the ability to engage in social activities, maintain relationships, and assume social roles and responsibilities It evaluates the effects of a patient’s health condition on his or her social interactions, social support network, and overall social well-being. 

Body image is a specific aspect that centers on the patient’s feelings and satisfaction with their physical appearance, including body shape, size, and appearance-related worries. It addresses any emotional or psychological repercussions linked to modifications in body image as a result of a medical condition or treatment.

Cognitive Functioning examines the patient’s cognitive abilities, such as memory, attention, problem-solving, and decision-making. It evaluates any cognitive impairments or changes encountered by the patient, thereby assisting in determining their impact on daily functioning and quality of life. 

Pain is a crucial component of PROMs that evaluates the intensity, frequency, and location of the patient’s pain. It provides information regarding the patient’s pain levels, its influence on daily activities and overall health, and the efficacy of pain management interventions.

PROMs frequently include components that focus on particular symptoms associated with a specific health condition or treatment. Depending on the context, these symptoms may include fatigue, vertigo, shortness of breath, insomnia, loss of appetite, and others. Assessing symptoms aids in understanding the patient’s symptom burden and guides strategies for symptom management.

Satisfaction with:

  • Clinians or surgeons
  • Admin staff
  • Nursing
  • Information
  • Porcesses
  • Digital assets